I was just scrolling back through some of my friend Sara Ryan’s tweets and blog posts and I came across some photographs of LB’s Justice Quilt. Sara includes them from time-to-time and they never fail to hit home. The images themselves are terrific but it’s who and what they represent that’s the really important thing.
Sara’s son Connor Sparrowhawk, sometimes known as ‘LB’, was a young man who had a way with words. He loved music, having a laugh with family and friends and he adored all forms of transport, especially buses.
In 2013, aged eighteen, he was admitted as a temporary patient to a specialist hospital treatment and assessment unit for people with learning disabilities. On July 4th, he had an epileptic seizure and drowned in a bath. His epilepsy had not been correctly monitored by the hospital and he had not been properly supervised. At first, the hospital trust maintained that LB had died from natural causes but an independent inquiry concluded that his death was preventable and his inquest pointed to the hospital’s neglect as a contributory cause of death. The unit was closed down because of poor standards of care. A substantial number of other uninvestigated deaths subsequently came to light.
We only know the truth about what had happened to LB because of the superhuman efforts of Sara and her family together with their many friends and supporters. An active social media campaign demanded Justice for LB as well as improvements to services for other people with learning disabilities. Campaigners stressed the equality and humanity of all people and the value and validity of lives lived with disability. The campaign grew in an organic sort of way with a lot of people making very diverse and highly effective contributions. Sara has often written about the fact that in the darkest times she drew comfort from the activities and intentions of this loose-knit network of caring people who responded with genuine sadness and outrage to her son’s death. She once quoted Joni Mitchell, saying they ‘played real good for free’.
Sara’s written a wonderful book about Connor, what happened to him and the fight for justice.
It's Called Justice for LB and it's published by Jessica Kingsley Publishers.
In the spring and summer of 2014, Janis Firminger, Jean Draper, Margaret Taylor and I made LB’S Justice Quilt. We wanted to make something from textiles to celebrate Connor’s life and to mourn his death: a collective piece that reflected the mood, energy and diversity of the campaign. We had a vision of a colourful, riotous banner made in the tradition of protest stitching. We wanted to make something that recognized Connor’s unique talents and captured not only anger and sadness but also the enormous love and generosity that was evident in his family and their support networks. We decided on a quilt rather than a banner because we thought it had more of a sense of love, care and comfort about it. In the beginning, only Janis, Margaret and I were involved but a short time in, we had to confess that stitchers we might be, but none of us had a clue about quilting techniques. So we asked Jean to help because there’s not a lot she doesn’t know about fabric and thread. She couldn’t wait to join in.
We put out a call on social media and through our textile networks for people to contribute patches of cloth with stitching, drawing or writing on them, saying something that they thought was important about LB and the campaign for justice. We felt strongly that people should have the freedom to create the pieces in their own way and we emphasized that you didn’t need to be a stitcher or an artist to take part- you just had to want to do it. We also asked if people had spare thread and pieces of fabric for making the backing cloth.
Well, all those social justice campaigners and outsider artists out there sure didn’t need telling twice! The patches and the gifts of thread and fabrics started coming in thick and fast. Apart from the individual contributions, staff and students at Cardiff Law School and the Cardiff textile degree course held a joint stitching workshop to make patches and learn about the campaign. The children from Messy Church in Kent organized by Beckie Whelton, made some terrific patches. I can tell you that Becky’s Messy Church sounds a whole lot more fun than the Sunday School I went to!
The pieces that people sent us to work with were more arresting, inventive, moving, angry, irreverent, colourful, thoughtful, beautiful, affectionate and informed than anything we could have hoped for. They came embroidered, appliqued, crayoned, painted, felt-tipped, crocheted and knitted. The age range of the men, women, girls and boys who sent us their fragments of cloth was 3-85 years. Patches sometimes arrived with apologetic notes, hoping they were good enough. Good enough? Yes! Yes! Yes! More than! Every single one! There were hundreds of contributions and they arrived from all over the UK and seven other countries.
When all the patches were in, we put the rather complicated jigsaw together and spent the summer of 2014 machining, quilting and hand-stitching ‘The People’s Art Work’, as we sometimes called it. It was everything we hoped it would be -and much, much more besides. It gave us immense joy every time we worked on it, looked at it and talked about it. We were incredibly moved by it, too. But of course, the whole point is that it wasn’t really down to us at all. The main reason for its magic was that a whole bunch of people who cared about what happened to Connor and who wanted to change things for other learning disabled people, had risen to the occasion and set to. All the patch-makers’ names are printed on the back of the quilt. The quilt belongs to Sara and is kept by her but every time I see photographs of it, I want to give my heartfelt thanks all over again to all the patch-makers, protest stitchers and outsider artists who made it what it is. It ‘s truly brilliant that they created so many strong and beautiful fragments of resistance in response to something so terrible. What gifts they gave!
The quilt has been exhibited at The People’s History Museum, Manchester, The Yorkshire Sculpture Park, The Peter Scott Gallery, Lancaster University, Mansfield College Oxford, Coventry Cathedral and The Kings Fund.
A collaboration between the quilt makers, the University of Warwick Music Centre, The Mead Art Gallery and Warwick Law School culminated in an all-day event, LB, A Child of Our Time, on 26 June 2016 at Warwick Arts Centre: The quilt was exhibited to mark LB's death, to celebrate his life and to draw attention to the widespread violation of the rights of learning disabled people. The day ended with a performance of the spirituals from Tippett’s A Child of Our Time by the University of Warwick Chamber Choir and Chorus. Members of the public were invited to join in an all-comers choir.
There was a really nice BBC News report about the event https://www.bbc.co.uk/news/uk-england-36634270